OUR ACTIVITIES

We will be launching a Newsletter to provide updates on new research related to TRIM8 syndrome, as well as information on adaptive equipment and educational and therapy resources for patients and their families. Contact us to receive our Newsletter.

We will be facilitating future electronic chats and video conferences on issues related to the treatment and management of TRIM8 syndrome for patients, their families and interested researchers and therapists. Contact us to receive notices of upcoming chats and/or videoconferences.

MAKE A CONNECTION

It can be difficult for TRIM8 patients and their families to find the information they need. Please join us in trying to change that.